Patient Engagement

We connect patients with the pioneers developing tomorrow’s therapies. From patient speaker series to disease awareness to trial enrollment campaigns, we develop customized engagement strategies to meet both your needs and the needs of the patient community. Our watchwords: Empathetic. Authentic. Strategic.

This comprehensive campaign supporting enrollment in Zafgen’s natural history study of Prader-Willi syndrome included a dedicated website, media outreach, social media and close partnership with patient organizations. Within six months, the study had exceeded its target enrollment of 500.

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LogicBio Therapeutics sought to raise awareness of methylmalonic acidemia (MMA), a rare genetic disorder. We spent a day with Yusuf and Khadija Patel, who are living with MMA, at their home in Delaware. The resulting narrative and photos helped readers see beyond the medical terminology and empathize with the patient experience.

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We conducted interviews with families around the world who are affected by the rare disease aspartyglucosaminuria (AGU) to understand what they wanted from a patient-focused website. The outcome: a site that explains the biology of AGU; walks families through disease management; explains current research; links to important resources; and shares the personal experiences of patients. Families have praised the site as a one-of-a-kind resource for the AGU community.

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Dyne’s lead indication, myotonic dystrophy, is not well understood, so we sought to raise awareness of the disease as the company emerged from stealth mode. The result: A powerful profile of Joachim Boekelmann, a father of two who was diagnosed with the disorder in his 40s and lives with the challenges of progressive muscle weakness. Through their comments and photos on the Dyne website, Joachim and his family effectively convey the tremendous unmet need in myotonic dystrophy.

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We designed Spark Therapeutics’s Eye Want 2 Know campaign to raise awareness and understanding of genetic testing for inherited retinal diseases. The website, designed to be accessible to visitors with limited vision, was complemented by aggressive media outreach and a social campaign that quickly rang up more than 50,000 impressions. One metric of success: In the first six weeks, the “Find a provider” tool was used more than 200 times.

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We designed and executed the “All in for CF” campaign to serve as a rallying cry for Vertex and its community partners. The campaign included a striking mosaic made up of “I’m all in for CF” selfies; dedicated website pages; patient narratives and videos; patient scholarships and mentorship programs; close coordination with advocacy groups; and a highly visible conference presence. A targeted social media campaign at the 2018 NACFC conference put Vertex’s core messaging in front of a highly relevant audience of nearly 80,000.

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